Crohn’s often pops up in the news these days, which is great for highlighting the disease. More and more celebrities are being open about living with the disease and the side effects of the medication, which is not easy given the common misconceptions attached to Crohn’s. I was diagnosed almost 6 years ago and have written several posts about it here. I try to be as open about it as possible, there is no point in writing about it and not being honest. With that in mind here is a list of things Crohn’s sufferers (or me, at least) wish you knew: 1. Crohn’s isRead More →

You may have already read my accounts of living with Crohn’s if not you can find them collectively here. In light of the fact that Crohn’s is back in the news again today, thanks to Dynamo, I spoke to my mum and my partner, Vince, this morning and suggested that they might like to put their experiences down. We often hear from the person with the disease but not their family. My mum clearly took it seriously as this popped into my inbox before lunchtime! Erica has written an account of her experiences having been diagnosed and living with Crohn’s disease over the last few yearsRead More →

“You don’t look ill”, “Aren’t people with Crohn’s skinny?”, “All you need to do is stop eating xyz and you’ll get better”, “Have you tried Aloe Vera/Juice Plus/Forever Living?” All things I have heard in the few years since I was diagnosed.  All are frankly bollocks.  No, if I wear make-up I look reasonable. No I’m not skinny but I still shit more in the first hour I wake than than most people do in a week – or two.  No, not everyone has trigger foods (although many do, they’re probably thinking of coeliac or IBS).  And NO I am not trying your multilevel marketingRead More →

I am FORTY next week.  Apart from going on about it quite a lot I’m not really that bothered.  Age is just a number and if you’re only as old as the man you’re feeling then you can subtract 7 years – oh yes!  It has got me thinking a bit about “if I knew then what I know now” so here goes. 1)  You were never ugly As a teen I was convinced I was ugly.  I hated myself. Fuck me! I was so serious about how I looked.  Because I hated the way I looked I spent hours putting on makeup, I wouldn’tRead More →

Strength

I’m back from another long day in A&E because of this bastard disease, Crohn’s. I’ve previously written here about my diagnosis and first operations (have a gander, it’s thrilling – intensive care and everything).  Cutting a very long story short since August 2013 I’ve had 6 operations 5 of which were within 20 months of each other. I had my most recent operation two weeks ago for an anal fistula (google it, you won’t be disappointed).  Over this past weekend a (very painful) lump came up and I’m having fevers and not feeling at all well so my IBD nurse (firmly) suggested I attend A&E. IRead More →

3 girls in a park

Recently I was tagged by both Carter Family 4 and Pass the Prosecco Please to write 20 things you didn’t know about me. So here goes: 1) I don’t have a middle name.  When deciding what to call me my father suggested naming me after an engineer, Mr Wankel. My surname is Knight. You get the idea (Wankel Knight…) 2) I nearly died following an operation to remove part of my bowel (due to Crohn’s) after I developed a leak and septicemia in 2013 when Big L was 2. I was in intensive care for a week and spent a month in hospital.  I had 5 operations in aroundRead More →

I’m sat here on this lovely summer’s day 3 years to the day that I had my first major operation. An operation that would lead to a further 4, and counting… I was diagnosed with Crohn’s disease in September 2012. Big L was 1 and Little L was a sparkle in his father’s eye.  I’d suffered with what had been previously diagnosed as IBS since my teens and been backwards and forwards to the Dr’s since.  It turns out it was actually Crohn’s. Crohn’s and IBS have very similar symptoms and Crohn’s is apparently hard to diagnose. It was found because I’d been ill withRead More →